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17-Jan-2018 06:48

The obviously tragic fantasy for me was that my children would lose their mom and have only the flickering memories of the three and five years we had respectively shared.

When my husband suggested -- innocently enough -- that I think about "making them a video" I completely unraveled.

In order to physically prepare and to quench my thirst for working out, I began a rather meditative version of my Pilates matwork whereby I focused nine-tenths of my energy on breath and precision in a way I wasn't always able to do when racing the clock.

And fancy this -- I still poured sweat and felt stronger in new and more connected ways.

In case you're interested, here is a little clip of my doctor and the surgery.

(It's graphic so don't click if you can't stomach it.) A synthetic graft now sits where the aneurism used to be and while I'm not bionic, nor completely safe from future aortic issues, I am on the other side and happy to be looking back on the procedure rather than waiting for it to happen.

Really it's just been the kick in the ass I needed but actually the choice was there all along. There are so many tangents and avenues from this experience that I hope to share in future blog entries -- not least of which is my ongoing physical recovery process.

Richard Devereux, and remained impervious to the idea that I might not be able to control my own bodily tissue.Just as the act of running down a hill can take more concentrated energy (and be exponentially more dangerous) than running up, I am in an active state of deceleration now and am slowly reintroducing myself back to the outside world.I recognize that I've been given the opportunity to recreate my reality, my time management, my self-care and my perception in a way that very few may ever experience in this lifetime.It affects about 1 in 5,000 and lays claim to some rather famous sufferers ranging from Jonathan Larson (the playwright) and singer Joey Ramone to U. Olympic Volleyball team captain Flo Hyman and right the way back to suspected carriers Abraham Lincoln and Mary Queen of Scots -- although, obviously, Marfan's cannot be held accountable for assassinations and be-headings!New to the table is talk surrounding Michael Phelps as a possible candidate as well. ) So, I had always been convinced that this disease would never really get a hold on me and that I could beat the odds -- after all, my Pilates training kept me fit and hyper-body conscious at all times.

Richard Devereux, and remained impervious to the idea that I might not be able to control my own bodily tissue.Just as the act of running down a hill can take more concentrated energy (and be exponentially more dangerous) than running up, I am in an active state of deceleration now and am slowly reintroducing myself back to the outside world.I recognize that I've been given the opportunity to recreate my reality, my time management, my self-care and my perception in a way that very few may ever experience in this lifetime.It affects about 1 in 5,000 and lays claim to some rather famous sufferers ranging from Jonathan Larson (the playwright) and singer Joey Ramone to U. Olympic Volleyball team captain Flo Hyman and right the way back to suspected carriers Abraham Lincoln and Mary Queen of Scots -- although, obviously, Marfan's cannot be held accountable for assassinations and be-headings!New to the table is talk surrounding Michael Phelps as a possible candidate as well. ) So, I had always been convinced that this disease would never really get a hold on me and that I could beat the odds -- after all, my Pilates training kept me fit and hyper-body conscious at all times.I watched my mom go through the surgery, preventively, but had convinced myself that it was her Multiple Sclerosis that made this necessary.